This is a hard story for me to tell. It is way to private and intermate. Seeing my sister in the ICU again, was harder than ever before. It hit my heart and my memories into a 3d pictures that I never wanted to view or see ever again I was 12 and my mother had been told that my sister might have leukoma by our family doctor. My mother explained the situation very clearly to me. "Your sister is very, very sick, and from now on you must be the older sister and understand that how bad this will be and live with it.
Years forward she did not. She was told that she had a very rare genetic disease from Eastern Europe Jewish families. Years of infusions started. Weekly infusions that cost was prohibitive. My parents sold their house and moved down to DC to be closer to my sister and family. I was just back from living in California and need to get a job and a place to move to. And that was that.
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